My Cancer, My Voice (download only)

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This Bowel Cancer Australia report highlights the lived-experience of bowel cancer patients following the first national patient survey of its kind.

It shows Aussies with bowel cancer feel like they have the 'wrong cancer' due to lack of dedicated support services and low awareness.

Results from the My Cancer, My Voice survey of nearly 300 Australians affected by bowel cancer show:
  • More than three quarters (76 per cent) believe the Government does not provide enough dedicated support
  • A similar number (77 per cent) said more life-extending treatments were needed
  • Four out of five (81 per cent) felt the general public doesn't understand their cancer
  • Discussion of bowel cancer is off-limits as the majority (60 per cent) believe people think it's 'dirty'.

Almost 300 bowel cancer patients and bowel cancer survivors completed a survey between March 2013 and April 2014.  They included men and women of all ages, from their 20s to over 80s, from the city and the bush. Current bowel cancer patients included those with early and advanced disease.